Saturday, December 19, 2009

Reference to an older post

I received a note on an old post that really touched and humbled me last night.

For the record, I will say that if I had chronic Lyme disease, that I WOULD DEFINITELY follow a long term regimen of antibiotics to aggressively kill of the several forms of the disease. I do believe, though probably hundreds of hours of research, that chronic Lyme disease is a much bigger problem then the medical establishment will recognize and that many more people are suffering from it than anyone realizes. I also happen to believe that there is a connection between Lyme and things like ALS and MS and that it can be communicated via tainted blood. But then again, I'm not an MD, only someone who has been drastically and painfully forced to learn about these issues.

The biggest problem I have with Mindy is that she completely dropped us the very second that we questioned whether her treatments were helping and suggested potential other things that we had heard about. She never called back and she cancelled Heidi's prescriptions at the pharmacy she is literally directly connected to, even her anti-depressants (which is extremely dangerous, especially given that she had been involved directly and acutely aware of Heidi's extreme depression and suicidal tendencies that flashed up from time to time.) Completely inexcusable and irresponsible. To date, she has never addressed my blog, except maybe for in an anonymous post that was very suspicious to me being "pro Mindy" and chastising me for "taking people's hope away" by not recommending her.

OK. End rant, but please do review Kris' note at the bottom of the comments section here. I hope that spouses and family of those affected by these degenerative disorders do step up and to whatever they can for their loved ones.

http://alschronicle.blogspot.com/2009/02/readers-comment-and-my-response.html

Peace to you during these holidays. And Health...that would be my wish for all of you.
B